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Why I prefer sickle cell disease prevention to the search for a cure
As a survivor of sickle cell challenges and a passionate advocate for sickle cell disease prevention and a cure, if I were put under...
Joye Smith
Mar 5, 20243 min read
To improve our quality of life, we have to imagine greater awareness
I’m extremely passionate about raising awareness of sickle cell disease. That probably comes as no surprise, considering I have the...
Joye Smith
Mar 5, 20243 min read
The benefits of community engagement across our rare diseases
Last Friday was notable for two reasons: my most recent column was published, and I canceled a planned meeting with two friends at the...
Joye Smith
Mar 5, 20243 min read
Removing financial barriers to treatment for sickle cell disease
In the past, I would eagerly anticipate news of drug approvals for the management of sickle cell disease. The potential of new...
Joye Smith
Dec 5, 20233 min read
Masitinib clinical program in SCD awarded €9.2M in France
A clinical project designed to test whether masitinib, AB Science’s experimental oral therapy for sickle cell disease (SCD), can resolve...
Joye Smith
Dec 5, 20232 min read
I’m learning to embrace both natural and pharmaceutical medicine
My mother-in-law is a firm believer in nature’s medications. Her faith in the healing power of plants stems from the lush soils of her...
Joye Smith
Dec 5, 20233 min read
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